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Morgellons: Whatever the Cause, the Suffering Is Real Print-ready version

by Jacob Molyneux
ajnoffthecharts.com
April 2, 2015

Image, provided by Morgellons Research Foundation to AJN in 2008, described as depicting fiber-embedded skin removed from facial lesion of 3-year-old boy with Morgellons (magnified 60x).

As you may have read, Joni Mitchell was recently found unconscious in her home and is now in the hospital. She has attributed her health issues to a syndrome called Morgellons—a condition in which sufferers experience what they describe as fibers emerging from their skin, along with intense itching, sores that won't heal, and a host of nonspecific symptoms such as fatigue and concentration problems.

Whether it's a clinically verifiable illness or, as some have argued, a manifestation of a psychological condition known as "delusional parasitosis," Morgellons is plenty real to those who experience it.

We covered this controversial illness several years back in an article called "AKA 'Morgellons.'" I interviewed two nurses and several others about their experiences. One of the nurses (see this sidebar) was convinced she had caught the condition from a patient. I also spoke with Michele Pearson, MD, the lead investigator of a then-pending CDC study to look into the disease, which had been announced in response to an extensive patient advocacy campaign. As she put it at the time:

"It's a complex condition . . . It may be multifactorial. What we now know is through self-report or anecdotal. There's nothing systematic."

As a recent Time article, notes, the results of that study were inconclusive:

The researchers studied skin biopsies and urine and blood samples to see if they could determine a common cause. They basically concluded that they didn't buy it: "No common underlying medical condition or infectious source was identified, similar to more commonly recognized conditions such as delusional infestation."

Suffering, whether we understand its cause or not, should be taken seriously. No doubt we'll be hearing more about this condition, and more debate about whether it's real or not. But in the meantime, how can we help those who believe they have Morgellons?

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Added to Library on April 12, 2015. (2998)

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